The data and information provided through this Query System are intended for the use of individuals associated with institutions of higher learning or non-profit health care institutions. The goal is to assist in the preparation of research protocols or for similar purposes preparatory to research. Any use of this query system to collect data for actual research must first be approved by the Utah Resource for Genetic and Epidemiologic Research (RGE) and the Institutional Review Board(s) of the institution(s) engaged in the research.

As a UPDBL Query System user, I CERTIFY THE FOLLOWING:

• The information I have provided is complete and accurate.
• I will limit the use of these data to providing information for proposals and project development preparatory to conducting research.
• I will not publish or present any information gathered in this Query System, including but not limited to abstracts, posters, conference presentations, or manuscripts, without RGE approval.
• I will not attempt to identify any individual represented in the query system data.
• I will not link the Query system data with any other data that, after linkage, might allow identification of an individual represented in the query system data.
• I will use appropriate safeguards to prevent the inappropriate use or disclosure of individual(s) represented in the data, including when disclosing the Query System data to others.
• I will IMMEDIATELY report any inadvertent or intentional disclosures of the identity of individuals or violations of this agreement of which I become aware, by myself or others, to the director of the Utah Resource for Genetic and Epidemiologic Research (RGE) at the University of Utahrge@hsc.utah.edu or (801) 581-6351
• I understand that failure to adhere to the above stated agreement items will result in loss of access to the UPDBL Internet databases, and I may be subject to other regulations and laws that apply.